Making the bed (especially our California king beast) takes a lot out of me now thanks to my new buddy #cidp. Celebrating this #smallvictory by showing off our beautiful new setup! Feeling very #homegoodshappy with our Mr. & Mrs. Pillow! It used to live in my office, but I love the way it...

Words cannot adequately express how very humbled and grateful we are for the generosity of our friends today. You are truly the hands and feet of Christ and Thomas, Eli, and I are blessed to know you. Thank you from the bottom of our hearts for all of your amazing hard work; our house is finally...

"Awestruck we fall to our knees as we humbly proclaim, You are amazing, God!"His JOY comes in the morning! 💕🙏 #choosejoy #chronicillness #C...

By @restorationhouse via @RepostWhiz app:PROVERBS 31:25 | “…without fear of the future.” #choosejoy #chronicillness #CIDP #givemeJe...

Today was our first day on our own since Mommy came back from the hospital. We’ve been having a great day! I missed doing all these little things with you. My favorite part of being home with you now is watching all that you’re learning; you are so smart, sweet boy!! It’s Christmas Eve and I can’t...

We moved in the middle of my hospitalization (don’t ever do that if you can help it), so our house is still in boxes, but I knew if I made it home for Christmas that we would be putting up our tree. We were only able to take it out and “fluff” it before we were too tired to continue, but I’m thrilled...

Being hospitalized for over a month results in great joy from small events. One of my biggest goals while in the rehabilitation hospital was regaining enough strength to hold my son. I can’t hold him for very long, but it feels so good to have him in my arms again…my heart is full! #mrbigcheeks...

I’m about to blow up your news feed with events since I’ve been home…sorry about that. 😊I have always wanted to try one of these things, and now I finally have a reason! Choosing joy with my zippy cart at the grocery store. #CIDP #chronicillness #choosejoy #theeverydayproject #latergram #mrb...

First full day and my biggest lesson is pacing myself. I am still having a pretty difficult time accepting that I can’t do anything the way I used to. My mind is so willing, but my body is so weak. I know it will get better, and I will wait with joyful hope. Time for a good nights rest and a...

Reunited and it feels so good!!! 💕💕😃😃 #mrbigcheeks #mywholeheart #theeverydayproject #CIDP #warr...

My nails are ready for Christmas!! I can’t wait to see my boys tomorrow morning!!! 💕💕🎄😄 #theeverydayproject #CIDP #youcantstopme #warrior #glitter #nails #choose...

By @lifeteen via @RepostWhiz app:The most accurate Advent feeling ever #excitement #joy #hope #preparation #advent #LTdailylol(#RepostWhiz a...

"I’m coming home, coming home, tell the world I’m coming home…""I’ll be hooome for Christmas!!!" 🎶🎄❄️💕Tomorrow’s the day!!! I’m leaving with a walker and a lot more work to do, but I get to do it surrounded with the people that mean the most to me. It’s been real, rehab....

New Expectations

Suddenly having your health taken from you really makes you think (often by force…hospitals don’t leave you with much else).  Last week officially marked one month from when this hospital stay journey began, which made me sit and reflect yet again on my new normal.I’ve learned quite a bit about CIDP since I suspected that was what was wrong (about 2 weeks before my actual diagnosis), and continue...

I was required to make an independent transaction as part of occupational therapy today during our outing…this gives new meaning to the term retail therapy! #choosejoy #CIDP �...

It’s community outing day!!! Hello, civilization, it’s been over a month! ❤️😃 #CIDP #choose...

Nighttime is always the most lonely here in the hospital, but after a trip downstairs to the Christmas tree, and some time alone to sing to my God, I am feeling the joy of the spirit again. Today, I am joyful and triumphant. #bestofover #advent #warrior #CIDP #choose...

I am going to miss this girl SO much after she goes home tomorrow!! We are convinced someone cheated when they put us together; we have so much in common it’s scary. Roomies and new amazing friends; so blessed to know you @hallie4rose!! #warriors #theeverydayproj...

Visits are my favorite! My heart jumps every time you come through that hospital door, little boy. You and your daddy are my entire world. #mywholeheart #mrbigcheeks #theeverydayproject #happymama #CIDP #chronicillness #warr...

My amazing brother and sister in law sent me a village of cake pop snow men all the way from Florida!! Aren’t they adorable?? Thank you @thebusypeahen!!! ❄️❄️⛄️⛄️#choosejoy #chronicillness #CIDP #invisibleilln...

And on days when I feel sad, I color. My mom finds the best crayons (@target is amazing). #arttherapy #choosejoy #chronicillness #C...

Christmas time is here…❄️⛄️�...

The high schoolers at my parish are the sweetest!! Look at all these amazing happy cards and crafts! I love happy mail! Thank you so much @caite.shea and friends!! #CIDP #warrior #choose...

NRH Christmas party with Vic the mascot, and my awesome roomie Hallie! We are warriors! #chronicillness #choosejoy #warr...

Pink is my power color. @reachrecords is my warrior music. All I need is #116. #CIDP #warrior #chronicillness #youcantsto...

My blood pressure refuses to behave itself, so instead of going to PT today, I am spending extra time with Mary. How can I pray for you today, friends? #CIDP #chronicillness #catholic #warrior #choose...

Today was a tough day. The hospital is a very lonely place, and CIDP is a pretty frightening diagnosis. But in the midst of all the crazy, I get to spend a little time with the men that hold my heart and keep me going. If you see them, give them a hug for me…they are warriors, too!! #CIDP #chronicillness...

Today was my first day at the Rehabilitation Hospital, and I am completely exhausted. Even having a conversation is exhausting. But this beautiful tree reminds me of the amazing love of Jesus and the life he gave for us. I love the joyful anticipation that comes with the season of Advent. I may...

First time riding in an ambulance! We hospital patients get transferred in style. Look out DC…I’m coming for you. #youcantstopme #fighter #C...

Check it out…I’m wearing normal clothes!! I feel human again!! I also made my awesome nurses a thank you card with crayons…coloring makes me happy. Goodbye hospital, hello in-patient rehab! #CIDP #fighter #chronicillness #theeverydayproject #youcantsto...

"Let us run with perseverance the race that is set before us." - Hebrews 12:1So today was the last day of my first round of IVIG treatments.  Overall, treatment so far has been a huge success, though I did not initially see any improvements.  In the last two days I have regained the...

Two days ago (and for the last month), I was unable to bend my legs or lift my foot off the floor. Today is treatment day 5/5…just out WALKING in the hallway…no biggie....

Words cannot express how thankful I am to have such an amazing family. With my new (super awesome, remote controlled LED candles) advent wreath, I am now able to fully participate in the joyful anticipation of this blessed season of Advent while in the hospital. My heart is happy and full! #theeverydayproject...

commit2pray:Embrace conflict through #prayer. You will strengthened for the journey. 💪I love this! “…the scenes we want to skip produce the endings we all love to se...

Today marks two weeks of being at this hospital, and 2 1/2 weeks of generally being hospitalized. Today, I am thankful for all the amazing nurses and techs who make it possible for me to shower and feel like a human. There is a special place in heaven for these people…they are amazing. #theeverydayproject...

The bible reminds us time and time again to hope.  Hope continually, hope in His word, never lose hope.  Hope can be so difficult to hold on to when life takes a crazy turn, but I know that God will use my new life with CIDP for His glory.  So I will wait with joyful hope for the...