One of the things they tell you is that often with a life changing diagnosis, you will go through the five stages of grief. As prepared as I think I am for this reality, I never am. Having your body completely betray you day after day is so difficult. Making the decision to #choosejoy is never easy, and fighting for a normal life every hour is exhausting.

Holding onto my faith today knowing He is with me.

“You make beautiful things out of the dust.” - Gungor #chronicillness #CIDP #ChronicInflammatoryDemyelinatingPolyneuropathy #remarkablyrare #warrior

Happy mail today!! I fell in love with @remarkablyrare from the first moment I found them and read their story. Those of us with a rare disease and the friends and family who care for us are so beautiful and strong! We celebrate that we are fighters and #remarkablyrare!! #fighter #CIDP #chronicillness #choosejoy #ChronicInflammatoryDemyelinatingPolyneuropathy