Everyone knows the best fashion accessory is a blood pressure cuff! #choosejoy #chronicillness #CIDP #spoo...
Saturday, January 31, 2015
The Future Freaks Me Out
That was one of my favorite songs ten years ago, and the title still holds true.I’m going to be honest…I genuinely strive each day to choose joy, and remember God’s goodness and how truly blessed I am. But some days I fall short of that, and fear wins.There is so little research on CIDP, and for someone like me who really needs knowledge to keep from panicking, well…it’s rough. The little...
Lost and Found
A few years ago, I participated in a drama piece with the amazing church I was then attending. It was simple…people were asked, in two words, to describe their lives before and after Christ. We were then asked to write the words on a poster, one word on each side. We gathered together and one at a time, stood on stage to share our words…our story, with the church.I was placed last...
Thursday, January 29, 2015
Tuesday, January 27, 2015
One of the things they tell you is that often with a life changing diagnosis, you will go through the five stages of grief. As prepared as I think I am for this reality, I never am. Having your body completely betray you day after day is so difficult. Making the decision to #choosejoy is never...
Friday, January 23, 2015
Audio "Growing getting better you’re not the person they seeCan’t be mad at the things you been through cause they built your muscleNow you’re stronger than you’ve ever been they can’t stop your hustleYour faith ain’t never small that’s what brought you this farSee you got your dreams and you got your prayers and you got your God He gone take you thereSee everybody has a season and I believe this...
Thursday, January 22, 2015
Our very first picture of our sweet baby girl. Only 8 weeks, but already a fighter with a strong heartbeat and dance moves. This is life. Every life is a gift. Marching in spirit with thousands today in DC. #iStand4Life #whywemarch #marchforl...
I am 22 weeks pregnant today! I was extremely sick for the first 19 weeks of this pregnancy (I couldn’t even eat plain Cheerios). Thanks to three different anti-nausea medications, I am able to enjoy food most days now. I will celebrate today by eating this out of the jar with a spoon. 🍴💕😋#imsopregnant...
Thursday, January 15, 2015
Happy mail today!! I fell in love with @remarkablyrare from the first moment I found them and read their story. Those of us with a rare disease and the friends and family who care for us are so beautiful and strong! We celebrate that we are fighters and #remarkablyrare!! #fighter #CIDP #chronicillness...
Day 15/365 - today we are celebrating another small victory! Eli and I managed to go on a ten minute walk outside all by ourselves!! It does t seem like much, but after being unable to even roll over in bed, I realize I have come a long way. Today and every day, may God be praised. #choosejoy...
Tuesday, January 13, 2015
Monday, January 12, 2015
Not feeling so great today, but I still have #joy because I got to try out the “Hot Tator” that my mom got me! Cooks potatoes beautifully in the microwave, so I’m having a sweet potato and stuffing for lunch! #choosejoy #chronicillness #CIDP #projectbles...
Sunday, January 11, 2015
Friday, January 9, 2015
One of the frightening things about CIDP is not knowing how I will feel on any given day. Some mornings, I wake up and wonder if I will have the energy to care for myself or Eli. But then I remind myself that God is in control, that I can do all things with Him, and that he’s told me time and...
Thursday, January 8, 2015
Oh. My. Gosh. Vera Bradley makes BABY CLOTHES (in amazingly cute packaging)!! I also have the BEST roommate from rehab (@hallie4rose) EVER!! God knew exactly what He was doing when he put us in the same hospital room. This little girl already has nicer clothes than I do! #boltonsbecomefour #t...
Wednesday, January 7, 2015
Day 7/365. Mommy was super tired from our adventures in the snow yesterday. I think you knew, because you have been so sweet all day, snuggling and playing independently. How did I get so blessed to have such a sweet little boy? #mrbigcheeks #choosejoy #CIDP #spoonie #theeverydayproject #365d...
Tuesday, January 6, 2015
Last year you were too young to care about the snow, but this year I was ready. We’ve been waiting all winter for snow to play in, and today it finally happened. I bundled you up in so many layers you look twice your size and could hardly walk, but I know you were warm. Watching you discover snow...
Sunday, January 4, 2015
The first verse from one of today’s readings really spoke to my heart. In the months leading up to my hospitalization and diagnosis, God placed an intense desire for Him and His word in my heart. I really don’t know where to begin with His #writtenword but I believe God will meet me right where...
Saturday, January 3, 2015
There have not been nearly enough baby bump pictures this time. Sweet girl, you and I have already had such an incredible journey together. I’m so glad you were there with me through all the scary hospital procedures and unknowns. You and Jesus make me brave. 19 weeks and the smallest bump. #theeverydayproject...
Friday, January 2, 2015
New Year, New Normal
Being home from the hospital has been so wonderful in so many ways. I am there when my son wakes up in the morning, and when my husband arrives home from work each day. I am there to fix my family a real dinner (with two boys in the house that’s how we show love!), and to make sure they have clean clothes. Thanks to my handy shower transfer bench, I’m able to shower and wear real...
Day 1/365 - For awhile there I thought we were done with teething…ha. You are currently getting about 4 teeth at once, so everything is for chomping once again. Have I mentioned how much I love your cheeks? ‘Cause I really, really do. #mrbigcheeks #365daysoflight #notiph...
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